Survivor…
Ten years ago this month (October 2000) I was chosen to play a tough game, Survivor. It was a little surprising that my name came up to play as I never even submitted an entry form. Nevertheless, I received a phone call, on September 4th 2000 informing me that my number came up, I was going to have the chance to play – CANCER SURVIVOR!!
As with any reality game, one must be selected based on certain criteria like; history in family, smoking, lack of exercise, not nursing your babies, and overweight. I fortunately meet none of the criteria but that didn’t’ matter when one is playing the BREAST CANCER SURVIVOR game. My name was called and I was in the game, like it or not. At first it was a mind numbing feeling and I kept asking why was I chosen for this? A few weeks after the initial call I was put into the game with meeting the “TEAM” of doctors who would help me win the game.
My first challenge was to tell my family. I remember sitting the children down, Audrey 16, David 13, Laura 9 and John 5 and trying to explain to them what was wrong with Mommy. Once I said the word ‘CANCER” the kids faces hung and tears flowed. Each child reacted in a different way. Audrey took charge and held John, David said that he would always be my sunshine boy and make me smile even when it got hard and Laura just got quiet. Laura’s concept of CANCER was a death sentence – so she had already went to the end of the game. I explained to her and have used the same phrase often over the years with all my children for other trials, “What is the worst that can happen?” Laura answered, “You will die” – to which I replied, “ maybe but I will be in Heaven and I can’t think of a better place to end up” – She understood that Heaven is a beautiful place where God is and God is good, kind and loving so all would be okay. My fist challenge was hard, but I SURVIVED.
No sooner did I complete the first challenge did the next one come, “TEAM PINK” had decided that surgery, lymph node dissection, 8 weeks of radiation followed by 6 months of Chemo therapy would be how the game was to be played. Why couldn’t I have been stranded in the Outback , like my favorite Survivor Episode? I would have gladly taken on the bugs, dirt and possibility of being voted out then to have had the game I was getting set to play.
I was physically fit going into surgery, but that didn’t matter – what was supposed to be an outpatient process turned into a three day hospital stay due to a challenge with the anesthesia and medications that they gave me. Turned out that I was so healthy I didn’t need as much as the “Normal” person and I had a adverse reaction. But, I passed that challenge and moved on to the next. Missing a big part of one’s body – can make one feel a little shy and uncomfortable but I just jump right in, to the pool that is. I begun to swim to improve my muscles in my arm, I needed full extension and rotation – so as soon as I was able I jumped. I received immunity from ‘TEAM PINK” and took the month of October off, which was National Breast Cancer Awareness month – so “GO PINK”
November and December brought the challenge of Radiation. Talk about being out in the elements – My skin was burned in a place that had never even seen the SUN – and I didn’t even get to enjoy the SUN, beach or a book. It was a big sterile room with a large X-Ray gun pointed at my chest! No sand, surf or suntan lotion. The other challenging fact was that my home life was a little crazy. I had lost my ability to be independent. Radiation makes one extremely tired, Ron was working and traveling for Washington Mutual (Killed by the feds in 2008), Audrey was in High school, David was in middle school, Laura was being bused to a school across town and John had just started kindergarten. I was the person who always was helping others, I had a real hard time asking for help. But, sometimes you have to create alliances’ with others in order to stay in the game. So, I learned to reach out, ask for help not just from my family but from friends also and much to my surprise they were willing to help me play the game and were praying that I would WIN!
During the last weeks of December I was granted immunity again by “TEAM PINK”. It was nice to be home and spend the holidays with the family. I tried to put on a good show, but I knew what challenge was coming and it weighted heavy on my mind that Christmas. I received some welcomed council from an Elder in my church. He told me that I would live to see my children raised to maturity and that was the hope that filled my heart as I entered into the next phase of the SURVIVIOR GAME!
I don’t think that if anyone was offered a challenge they would pick – Chemotherapy treatments! They are just plain HARD! Between the “HORSE” pills that I had to swallow, the injections, the implantation of a port catheter, the nausea and vomiting (the toilet bowl became my constant friend) and the out of control feeling – it was definitely a challenge that stretched me far beyond what I thought my limits were. This was the longest challenge, six very long months. I was not left alone, although my family and close friends were there to help pick up the pieces of everyday physical life – the real challenge was mental. I can remember just holding the tablets in my hands knowing I had to take them knowing that they were going to make me sick. With tears streaming down my face I would pick up a glass of water and swallow! For six months, Jan through June, I took pills with tears flowing, had injection with tears flowing and tried to cover up the tear stains with laughter. I would put on a smile and try hard to keep being a mom and teacher. Most days, especially as the months wore on, I would find myself in bed at least 2-3 weeks of the month. It was an exhausting treatment, especially for one so active.
In July 2001 my treatments were finished and so were my challenges in this SURVIVOR game, so I thought! Little did I know that the biggest challenge was still ahead of me. I found out that I was allergic to 2 of the drugs used to help prevent a reoccurrence- and that is when the biggest challenge started. I had to explain to my doctors that I was DONE with treatments; it was hard to be an advocate for oneself. Going against the advice of doctors to try more drugs for prevention was to them just plain crazy, yet I knew that it was the right decision for me. I need to get on with my life, I need to believe that I was a survivor and move on. So in September of 2001 exactly one year from my surgery I had my last visit with my oncologist and doctors. I was on my own. The big challenge now was to try to get my life back, which was mentally hard. For a whole year the doctors had control over me and it was difficult to remember who I was, for I was not the same young woman and yet I hadn’t had the time to figure who Heidi Gailey was now.
I am proud to say that now after a TEN years, a lot of self discovery and introspection I found myself, a SURVIVOR of cancer – but more importantly a better person then I was ten years ago. Cancer was a blessing in my life, I learned what is important and what is not. I learned to LOVE much and fear LITTLE. I am proud to be a SURVIVOR and would like to this month to thank everyone who has touched my life – you are important, you matter and I am grateful for you.
To all the other Breast Cancer Survivors – I like “TEAM PINK” –Lets hang out next October.